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Saturday, February 4, 2012

We have a plan

Our appointments at U of M went well yesterday and we have a plan… well sort of.  I will be induced at 39 weeks but we didn’t schedule the date yet because they do not schedule that far advance.  So we will schedule when we go back for our next appointment on March 2.

The day started off with the ultrasound.  We had the same tech as last time and she was very nice.  She cruised through the ultrasound and was able to get all the measurement quickly.  Nothing looked any different than before and our little one is already measuring to be about 4 lbs. 14 oz.  We are so excited that she is growing so well and is likely to be a nice sized baby.  We also got to see some of her hair, which explains my heartburn! 

Our next appointment was a meeting with a high risk ob.  The women’s ob clinic is right in the children’s hospital.  As with any appointment, it started out with my weight and blood pressure.  We were totally amazed (and happy) when my blood pressure came out on the low side for me.  It hasn’t been high this pregnancy but of course with my family history, it is always something we watch.  So good news there!

At the ob appointment, we learned a lot.  As far as the ob is concerned, I am not a high risk patient, but it is our little one that puts us into the high risk category.  I am going to continue to do the shared care, so that I can have my appointments with my local ob office, which is literally minutes from our house.  Of course, if there are any signs of labor before the scheduled induction date, we have to head over to U of M.  We obviously need to do what is best for our little girl and having her born at U of M is the best start we can give her!  Learning about how things will go makes us feel more comfortable and enables us to have a plan. 

After lunch we had a fetal echo.  The same fellow that did the first echo did our second echo.  Our little girl was moving around and put her chin down with her hands pulled in just to make things more difficult for the fellow and the cardiologist.  She is a feisty one!

The good news is that she is a “standard risk” HLHS patient.  The cardiologist says there are no “low risk” HLHS patients but there is nothing that would put her into a high risk category.  This is, of course, good news.  The cardiologist answered all of our questions and again we were able to come up with one that she hasn’t heard before.  I think we just have some odd questions!   The next echo that our little girl has will be once she is born!

After the echo, we got a tour.  We started with the area where we will spend the least amount of time – the general cardiology rooms where we will be just before we are ready to go home.  These rooms are all private and both parents can stay in the room.  In this area is a big play room, art center, laundry and kitchen.  It was very nice and will allow our older daughter to come spend some time with us.  The next area we visited was the cardiology intensive care unit.  In this area we will spend a lot of time.  The rooms are all private and each room has one nurse assigned to it.  One parent can stay in these rooms.  Then we visited the other part of the intensive care unit where patients come just after surgery.  It is a more open style than the private rooms but there is still some privacy compared to old-style intensive care units.  One parent can stay bedside here as well.  We checked out the waiting room, which was already an emotional experience as any experience can turn into with a pregnant lady!

We then visited the Ronald McDonald House that is onsite and literally around the corner from the intensive care unit.  We are hoping that we can get a room there for the beginning of our stay but it is not certain. So we shall see on that.

We visited the milk storage area and found out more about the process for storing milk.  The final stop of our tour was an activity center that has just opened.  This activity center is beautiful as long as you are a Michigan fan.  It has a huge jungle gym and many other things that can keep the kids entertained for quite a while.  We think our older daughter will enjoy spending some of her time here.

Things are starting to come together and everything is feeling more real.  This can be both good and bad.  We feel that we are preparing as best we can but you cannot be prepared for everything and you never know where the road will lead you.  We are just happy to be working with everyone at U of M to give our little one the best care possible.

In the oddest part of the plan, my three sisters all have three different weeks off for spring break right after the time that our little one will arrive.  What are the odds of that?!? 

Thank you to everyone for all of your support!  It really means a lot to us.

As I finish writing this our older daughter is refusing to go to sleep for her nap despite falling alseep in the car on the way home earlier... Oh the joys :)

Wednesday, February 1, 2012

Ob Appointment

We had an ob appointment this morning with my favorite ob.  I love all of the obs at my office and the nurse practitioner – they are all great – but we have really connected with the ob we saw today.  She has been through so much with us and has always been positive (without blowing sunshine) and realistic.  It is actually sort of ironic because during my first pregnancy, I only saw her one time, she wasn’t my favorite and then she delivered our older daughter.  She was great during the delivery and we liked her.  Then we didn’t see her again until after our diagnosis.  And now, since I don’t have to see all of the doctors, I try to schedule all of my appointments with her but she won't deliver our second daughter.

At the appointment we talked about whether she thought I would be induced versus going into labor on my own.  In her opinion, she thinks that they will schedule a date for induction about a week before my due date because this way we can make sure the cardiologists and other supporting team are available and ready.  She also explained that since this is our second, it should be an easier process because my body knows what to do (but of course nothing is guaranteed).  We were expecting this and we really want to do what is best for our daughter.  This sounds like it might be what is best but we will find out more on Friday at U of M.  The appointment ended in a hug, which was very much appreciated!

Saturday, January 28, 2012

National Blood Donor Month

January is already drawing to a close but we couldn’t let it go by without letting you know that this is National Blood Donor Month!  The American Red Cross needs to collect 22,000 units of blood each weekday and about 15,000 units of blood each weekend to meet patient needs.  That is a lot of blood and our baby girl will be one of those patients with needs!  Donation is slower in the winter but the need is still just as high.

We have decided not to do the directed donation program but please donate blood and encourage others to do so!  Just know that one of the lives you could be saving is our little girl's.  To find a donation opportunity near you, please go to: http://www.redcrossblood.org/make-donation

In other news, my bff had her second baby earlier this week a few days overdue – a girl and she is doing very well!  They were all able to come home from the hospital less than 24 hours after delivery.  My bff is such an inspiration and we are all so happy for her and her growing family!  I think that I had forgotten how little and fragile newborns are but we are only getting more excited for the arrival of our little one!  Our older daughter didn't get to meet the little one but she will soon.  We are hoping that she reacts well.  In the past she has just checked out babies and moved along like she has places to go and other people to see :)  We shall see how she reacts this time...

Everything is going well with us.  We are trying to fit in a lot of activities and home improvements now while we have the chance.  With so much going on, I have started to feel the third trimester slowdown but overall I am doing well and feeling good.  March will be here before we know it.  Check back next week for an update on our next round of appointments at U of M on Friday, February 3rd and remember that no news is good news!

Friday, January 20, 2012

Happy Due Date (& Other News)

Today is my bff’s due date and her little one has yet to make his/her appearance. We don’t blame him/her, it is cold out here! We are all excited to meet the little one soon!

We had another uneventful ob appointment and everything on paper "looks good." So really, there is no news. We are eagerly awaiting our next appointment at U of M on February 3rd to meet with the team and discuss some of the details our birth plan – ie induction vs. natural.

Finally, Dr. Bove has been was appointed chair of the University of Michigan’s Department of Cardiac Surgery. Great news for all the heart babies and warriors out there! Here is the link:

Edward Bove, M.D, appointed chair of new U-M Department of Cardiac Surgery University of Michigan Health System

Tuesday, January 17, 2012

Video of Hope - Anna's Story

I just had to share this video.  It had me bawling my eyes out by the end.  Anna has an underdeveloped right side of the heart, which is the opposite of our baby.  Thanks to Anna for sharing her story and to Heart Mom, Jenny, for sharing this video with me.  Enjoy!

Friday, January 6, 2012

Update on Appointments

Yesterday we had an OB appointment and another echo (ultrasound of the heart).  The OB appointment went well but reminded me why I always make my appointments in the morning :)  I got confirmation that my sugars were good and I gained weight over the holidays.  At least this year I have an excuse (thanks for all the good food family).

The good news out of the echo is that there really isn’t anything new to report.  Everything looks like it did at our last echo and there was nothing new to see.  It was the world’s longest echo though.  They didn’t even do all the body measurements and it took longer than any other echo that we have had (including the one which measured nearly every bone in our little girl’s body and her heart to diagnose her condition).  After we had been having the echo for about an hour, the tech said there was another machine that is really good to use with the heart and that we would move over to that.  Ugh!  Why weren’t we at that machine to start with?!?

Anyway, with the new machine and the doctor, things moved along.  There were no changes in her heart condition and she appears to be growing and developing as expected.  We even saw our little one yawn.  She is a cutie! 

Now we still have to get our hot little hands on a copy of the CD from the echo to take over to U of M for our next appointment in early February.  We had to fill out the paperwork to get the CD, so we will see if it actually works.  We are glad that the remainder of our echos will be over at U of M.

Hopefully there will not be many updates over the next few weeks.  We have an OB appointment in two weeks and then our next round of appointments over at U of M two weeks after that.  March will be here before we know it.

But in the meantime, we are looking forward to birth of my bff's baby here in the next few weeks!  Cannot wait to meet him or her!!!

Monday, January 2, 2012

Happy New Year!

We hope that you had a Merry Christmas and are having a Happy New Year!  We certainly had a great, warm Christmas and are now working on getting back to things in this New Year.  While we have many challenges ahead of us, we are looking forward to meeting our little girl in a few short months.

In accordance with my doctor’s office, we have been going with the no news is good news policy.  There really isn’t much to report, so sorry that there have not been any updates.  I am officially in the third trimester (no matter what way you measure it).  I did have an appointment with my ob before Christmas and things were fine – my weight, my blood pressure, the baby’s heartbeat.  They did do a blood drawn (and gave me a huge bruise on my arm) to test for gestational diabetes and in accordance with the policy above, I have not heard from them.  I usually like to follow-up because the confirmation always makes me feel better.  With the holidays and traveling, I have not been able to do so.

Coming up next we have another echo this week that will be here at our local hospital.  Hopefully there will not be any major news to come out of that.  We expect that things will look the same and hope that there will not be anything new and unexpected. 

We hope that this post finds you and your family well and that you have a blessed and happy 2012!