Februray 7-14 is Congenital Heart Defect Awareness Week so we wanted to pass along some information to help spread the word. Unfortunately, congenital heart defects (CHDs) are all too common and can happen to anyone at any time. We are proof of this as there is no reason that anyone can give us why our daughter will be born with a CHD and we didn’t do anything that anyone can point to that caused our daughter’s CHD. HLHS is just one type of CHDs and it is amoung the most rare. More research is really needed to help those that are born with CHDs and to help eradicate CHDs altogether!
According to the CDC:
-Congenital heart defects are the most common type of birth defect in the United States, affecting nearly 1 out of 100―or about 40,000―births per year.
-About 85% of congenital heart defects are NOT associated with genetic conditions.
-About 70% to 80% of people with a congenital heart defect do not have other physical problems or developmental or cognitive disorders.
-There are likely nearly 1 million adults in the United States living with a congenital heart defect.
These heart warriors have usually been through more in the first few years of their lives than we can even imagine! This week we will share with you some stories of these heart warriors with HLHS to give us all some hope!
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