Pages

Friday, August 17, 2012

Tube weaning

We will soon be starting a feeding tune weaning program! We are so excited and nervous at the same time :)

It is a net coaching program so all of our support is online and it is based out of Austria. The website to check it out is at: notube.com.

Today we talked to our cardiologist and got her official approval. It was helpful that she knew the cardiologist of one of the other heart moms that I have been emailing with about the program. We discussed everything that we need to be looking for. This is the first time we feel like we are getting some support for this feeding issue. We have had so much support for all of the cardio issues and then we are left to deal with this major feeding issue. The only support we have been given on it is to get a G tube. We want to give Audra the opportunity to be able to eat on her own before we do that. So here we are at the program.

We are hoping to start next week but we shall see. Audra has been doing well. She is taking more of her milk orally, which is encouraging. I hope once she figures out this hunger thing, she will take off in eating.

Happy Dream Cruise Weekend :)

No comments:

Post a Comment