Research

Over the past few days, we did TONS of research.  Some of the research was good and a lot of it was bad.  My bff, who is an awesome doc, did her own research for us and reached out to some of her doc friends.  She provided us with a wealth of information and support (as she continues to do). 

Through all of our collective research, we found that U of M’s Congenital Heart Center is ranked third in the country in pediatric cardiology surgery and Dr. Edward Bove is the surgeon to work with when your child has HLHS.  With knowledge is power and we began to feel hopeful and less confused.

We found that our daughter would need surgery on her heart within the first week of her life, then again when she is 4-6 months old and then again when she is between 18 months to two years old.  The survival rate of these surgeries varies based on the hospital and the surgeon, so this is why we decided to go with the leaders and best.  We still have a ton more to learn but we are ready and willing to move forward with a positive attitude!