Going Home Wednesday!?!

It looks like we are going to be discharged on Wednesday. Yes! This Wednesday! Audra's feedings have been going well. She had had some spit-ups, like a baby does, which of course makes us worry. But the nurses and docs aren't concerned, which is important.

Today was spent getting us ready to go home. It was frankly a bit overwhelming. We had both a hearing test and an EKG that came at the same time. The hearing test was much more difficult than I remember our older daughter's being. Audra had to be asleep after having some electrodes placed behind her ears. We got her back to sleep but then some of her wires caused interference. So after an hour of effort, we have to do it again tomorrow. Boo.

Another appointment we had today was with the occupational therapist to get some help with the bottle feedings. The first session was not very successful. The second session went better but we still have a long way to go. We can only let Audra try the bottle for 20 minutes because we do not want her to burn more calories than she is taking in. After that she gets her milk from the feeding tube. Hopefully she progresses quickly to taking all of the milk from the bottle so we can skip the feeding tube.

We made appointments with our pediatrician and cardiologist back home for the end of this week and next week. Audra also had to get her RSV shot even though it is the end of the season. Better safe than sorry. We also worked in giving Audra her meds and feedings ourselves today. It seems difficult but really isn't that hard.

Tomorrow is another big day. Audra will get her iv out and be taken off the monitors. Also, we will have a car seat test where they will monitor Audra for an hour on her car seat. And don't forget we have to repeat the hearing test.

We cannot believe how well Audra is doing and we are not taking this for granted. It is very important that she stays healthy until her next surgery, which will be sometime between July and September. We won't be taking Audra out much and we will have very few visitors. We need to do what is best for Audra!

Until next time!