It is really nice to be home. Audra likes having less people mess with her and still prefers to be swaddled up. She has reasonable amounts of "quiet awake time" during the day as mama refers to them as where she loves to be carried around the house and look around. We are still working on bottle feedings. Audra prefers to sleep rather than eat and with her feeding tube, she can do both ;)
Our first night home was a little rough. Audra was fussy and didn't want to sleep. She woke up her older sister who joined in the sympathy crying. This was to be expected. But now when Audra cries at night, our older daughter can sleep through. It is the small victories :) Our older daughter loves to give Audra her snuggle blanket and paci. It is very cute. She is a great big sister and has really been adjusting to this all very well.
Yesterday we had our first visit from our home care nurse. She was very helpful and will be coming twice a week for the next few weeks. We also had our first pediatrician appointment. It went well but we found out our main pediatrician is retiring at the end if the month. We will start to see another pediatrician from the group whom we like. Monday we will see our cardiologist.
On another note, a newly found friend who is an HLHS mom to be is in labor over at Mott. Please say a special prayer for her family as they start on their path!
Happy Easter! All the best!
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