So this morning we had our evaluation with a speech and feeding pathologist. Audra spit up in her car seat before we even got out the door so we weren't off to a good start. Then I may have panicked a bit when we got to the waiting room that opened to the medical center lobby and had kids running all around. I asked for a private room to keep her from the germs. It seemed that I was the first person to ever do this by their reaction but they quickly found a room for me. Then I found that I brought the second copy of the paperwork that I didn't fill out, rather than the completed first copy. Ugh. And to top it off, our therapist said she only had an hour for our two hour appointment. Not a good start.
But we overcame these issues and went through Audra's history. Then Audra had to eat. It was past time for her to eat but she wasn't really into it. Ugh. Not a very good evaluation but the therapist was able to spend longer than just the hour she stated she had.
We went go over some things we can do with Audra to try to help her improve her feeds. The therapist thinks that Audra tires out before she can finish her bottle and that she should be gaining strength. So we have to try the tips she gave us and will go back in two weeks. While it stinks to have a feeding tube, at least we do not have to fight with her to get the nutrition she needs. Also, we need to follow-up with our GI because the therapist wasn't sure we needed the swallow study and we do not want to have to do extra procedures if we do not have to.
Tomorrow we only have our home care nurse coming, which will be so nice after all these other appointments. But we have to get Audra's blood pressure, which is already increasing my blood pressure :( We just hope all of her numbers come back in the right ranges and that we continue to have a weight gain.
All the best!
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