So we had our appointment with our GI today. The short of it is that she wants to have Audra work with a few specialists on her feeding before we get a g tube put into her stomach. Also, we adjusted her reflux medicine, which already seems to be helping.
The long of it is that we are scheduling an appointment for a swallow study that will evaluate and show how she is swallowing to make sure there are not some issues there. We also have an appointment with a speech and feeding pathologist - she called on her day off after our GI called her about Audra. That makes me happy. She will do an evaluation and then we will work with her going forward for therapy. Hopefully this is more fruitful than with the home care OT. Our GI says that she has had good luck with her cardiac patients, so we are hopeful. The GI wants to give Audra until at least her next surgery (which we are waiting to hear the date) to try to improve her feeding. Depending on how she is doing then, we may consider the g tube that is put directly into her stomach. It is going to take some hard work but hopefully we can get Audra to drink the calories she needs (that continue to increase) through the bottle.
So we have more appointments and more evaluations ahead of us but we feel that we are on the right track. The good news is that Audra is doing well and gaining weight so we are a bit more flexible with our options.
Time to get some things done while both girls sleep :) or not... Baby is awake before I can even put her down.
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